CRC Friedreich's Ataxia

Tips for managing Friedreich’s ataxia

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Reduce stressTry yoga, breathing exercises, meditation or even therapy to help manage your stress and anxiety. Prioritize sleepLack of sleep can throw off your immune system and increase your stress reactions. Revamp dietFood allergies rarely cause chronic hives, but a low-histamine diet may slow future flares. Rethink clothingTight clothing and synthetics like nylon and polyester can trigger flares. Try breathable, loose-fitting cotton instead. Use sunscreenLimit your sun exposure. Also, wear sunscreen and sun-protective clothing while outside. Watch temperaturesSensitive to hot or cold temperatures? Hot showers or cold pools may cause a flare. Stay activeIf exercise isn’t a trigger, try low-impact activities like walking or swimming to improve your mood.

Exercise can help improve your strength, balance, coordination and flexibility — and be adapted to your mobility level.

Stay active

Eat a variety of foods such as fresh fruits and vegetables, whole grains, legumes, nuts and lean protein.

Follow a balanced diet

It may become necessary to use mobility aids like a cane, walker or wheelchair as your condition progresses.

Use assistive equipment

Your care team, which can include a neurologist, physical therapist and psychologist, can help manage your condition.

Communicate with your care team

Modifications like handrails, nonslip flooring and voice-activated lights can make moving around your home easier.

Consider home adaptations

Wear user-friendly apparel such as shirts with magnetic snaps and shoes with fabric fasteners.

Opt for adaptive clothing

Arrange travel, lodging and sightseeing accommodations in advance — and buy travel insurance with medical coverage.

Prepare for travel